September Meeting

This month's meeting should be a lot of fun!

We will have Christy Puetz from "beads of courage" joining us. In addition to explaining her program that all of our CHD kids can join, she will have all kinds of materials so that you can build awareness bracelets or necklaces.

http://www.beadsofcourage.net/

We would like to invite you, your families, and friends to join us!

Please bring the kids :) I think they will all enjoy themselves!

Hope to see you there!

The meeting will be an open house from 7:00-8:30 in the Windsor House of the Ronald McDonald House on Roanoke Ave.

An October Event for Teens with CHD

October 4th, 2008

A workshop for teenagers born with a congenital heart condition.

8:45 am – 12:30pm

Phoenix Museum of History

This fun educational day will be filled with a hands on workshop by the Beads of Courage program, question & answer panel with a cardiac physicians Dr. Stephen Pophal and Dr. Craig Cohen and concluding with a discussion with psychologist Dr. Matt Weyer.

The day will end with a lunch provided at 11:30am

There will not be programming for the parents on this day. Parents are asked to make alternate plans after dropping their teen off at the museum, yet be available by phone.

Location: Downtown Phoenix, at the Heritage and Science Park, between 5th & 7th Streets, and Monroe & Washington Streets. Located next door to the Science Center. www.pmoh.org

In order to drop off your teen for this event, drive south on 7th street, turn right on Washington, right on 5th street (one way), take a quick right into the parking drop off. A volunteer will be waiting at the drop off site, which is the back of the museum. This is where you will pick up your teen after the event at 12:30pm.

Please note that there is a large event taking place in the Heritage Square that day (located at the Museum’s main entrance) so we are using the rear entrance of the museum for convenience.

Please RSVP and direct questions to Lori Takeuchi 602-406-6437

This event is sponsored by the Nick & Kelly Children’s Heart Fund.

August Meeting Summarized

I want to thank those of you who were able to attend our August meeting. I hope that you found it to be informative.


For those of you who couldn't be there, we were visited by Melissa Doggett M.S.R.D. who is a pediatric dietitian for St. Joe's. She spoke with us about ways we could increase our children's calories while maintaining a heart healthy diet. Essentially she discussed the need to provide nutrient dense foods while limiting fillers.


She provided 3 handouts:

• High Calorie High Protein Diet for Infants



• High Calorie High Protein Diet for Toddlers and Preschoolers



• High Calorie Snacking

If you would like a copy of any of these please let me know kym.heartmom@yahoo.com and I will be sure to bring them to the next meeting for you.


Also, if you have any specific questions or concerns about your child's diet you can contact Melissa via email at melissa.doggett@chw.edu





We also had a surprise visit from Seymour Miller the Western Regional Director of Mended Hearts presenting us with our charter. Mended Little Hearts of Phoenix is now officially a non-profit support group.